I choose to tell my own story.
Welcome to the parts of chronic illness nobody puts on a poster. Here I share the honest, weird, occasionally hilariously frustrating reality of living in this body, through art, stories, and whatever thoughts happen to escape my brain that day.
Reflexiones sobre crecer en el extranjero con una enfermedad crónica
Mudarse sola, empezar de cero y, años después, recibir un diagnóstico de esclerosis múltiple lejos de mi familia. En este post comparto cómo es navegar el sistema de salud en un país extranjero, la soledad de una enfermedad crónica sin red de apoyo cercana, y cómo el amor de mi pareja y una comunidad internacional se convirtieron en mi nuevo hogar.
Multiple Sclerosis has a representation problem: people like me
A blank spot on a world map. A healthcare professional who called MS "a problem of industrialized countries" Who would have thought that the people representing me would end up underrepresenting me too.
How advocating for myself helped me get my spark back
Just recently, I was having drinks with a friend, and somewhere between one topic and the next, she told me she feels like I've finally got my spark back. It's the kind of comment that sends me down a rabbit hole. And it got me thinking about everything that had to happen for me to be sitting there with her, talking about finally being in a good place again.
Of job seeking with MS, toilets and other demons
There are many things I expected to affect my career when I was diagnosed with Multiple Sclerosis. My toilet was not one of them.